Surveillance of cerebral palsy in europe 2: support for research and training activities (SCPE2)



TypeHSR Project
SummaryDuring the last decade, changes in prenatal care across Europe have resulted in a fall in neonatal mortality- but the effect on the rate of Cerebral Palsy (CP) remains uncertain. Although CP is the commonest physical disabling disorder in childhood, it occurs in only 2 per 1000 live births. And there is still a debate concerning the aetiology of this condition, is it more related to adverse prenatal or prenatal events? Large populations are needed, therefore, to assemble sufficient cases. 14 centres in 9 countries have done initial work in developing a European database of children with CP. It has been recognised that using text guidelines alone is insufficient to achieve data harmonisation. A reference manual using videotape material and supporting next with translation will be developed, evaluated and used for training at local level. New cases will be added and the database will be used to support research projects, and to monitor CP trends in Europe. Individual centres already fund routine data collection.
CountriesDenmark, France, Germany, Ireland, Italy, Sweden, United Kingdom, Norway
SectorsPrimary, Hospital
TopicsPerformance measuring and benchmarking / comparing
Last update date09-20-2011 11:25


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